DES Action USA records, 1939-2016 (bulk 1975-2014): Collection Overview

Abstract:

DES Action USA is a national consumer advocacy group, whose mission is to educate and raise awareness about diethylstilbestrol (DES), an oral synthetic estrogen drug; and support and advocate for the DES-exposed population. The DES Action USA records are primarily comprised of materials documenting the activities, programs, and projects of the organization.

Terms of Access and Use:

Restrictions on access:

The Records are open to research according to the regulations of the Sophia Smith Collection with the following exceptions:

Researchers are required to sign a Records Access Agreement agreeing not to identify individuals named in letters or emails written to DES Action USA.
Series VII. MEDICAL CORRESPONDENCE AND RESEARCH DATA is closed until 2037.
Access to audiovisual materials requires the production of access copies.

Restrictions on use:

Copyright for the newsletter, DES Action VOICE, and organization's website are retained by DES Action USA. The Sophia Smith Collection owns copyright to all remaining materials created by DES Action USA. Permission must be obtained to publish reproductions or quotations beyond "fair use."

Copyright to materials authored by others may be owned by those individuals or their heirs or assigns. It is the responsibility of the researcher to identify and satisfy the holders of all copyrights.